tag:blogger.com,1999:blog-13238555172375234792024-02-06T19:01:16.864-08:00Unfiltered HopeThis blog is for Darren, for our family and friends, and for hope. Darren has kidney failure and has been back on dialysis for almost 5 years. As the days, months and years have passed we hoped for another transplant to come along. But like 80,000 others, we wait on a seemingly endless list. As I look at my beautiful daughter that in every way resembles her father, I realize that I can't fall short of doing everything I can. This is my blog of unfiltered hope.Sarahttp://www.blogger.com/profile/12085672328168262733noreply@blogger.comBlogger32125tag:blogger.com,1999:blog-1323855517237523479.post-75913927805661474722010-02-10T08:34:00.000-08:002010-02-10T08:50:13.900-08:00One more person with a working kidney...and counting<span style="font-family: arial;font-size:100%;" >Zach's surgery went perfectly and he is recovering well! Suzi, Zach's wife, has updated his blog with the latest should you want to follow their amazing story. <a href="http://zachentwistle.blogspot.com" target="_blank">http://zachentwistle.blogspot.<wbr>com</a><br /><br />The very exciting news is that his donation does not end here. There could potentially be many more people who receive healthy living donor kidneys in the next few months because of what he has started. The recipient of his kidney has someone willing to donate to someone he/she doesn't know but matches, who in turn has someone willing to donate...it's called a "chain donation." It's the ultimate "pay it forward" concept. <a href="http://www.paireddonation.org/anim2.htm">http://www.paireddonation.org/anim2.htm</a><br /><br />Thank you, family and friends, for your loving support and prayers for Zach and his family. I look forward to following his story and seeing how far his gift reaches.<br /></span>Sarahttp://www.blogger.com/profile/12085672328168262733noreply@blogger.com0tag:blogger.com,1999:blog-1323855517237523479.post-20576871959347286652010-02-07T22:22:00.000-08:002010-02-07T22:44:39.584-08:00Prayers for a friend today<span style=";font-family:arial;font-size:100%;" >Several months ago the husband of a good childhood friend of mine was tested to donate Darren a kidney. He was not a match to Darren, of course, but felt very lead to pursue living donation. He has, and tomorrow (Monday), he will be donating one of his kidneys to someone he doesn't know. And that person has someone who will donate to another, and hopefully a chain of donation will be started and not end until as many lives as possible have been touched.<br /><br />Please pray today for Zach and his wife Suzi that the surgery will go smoothly, the recipients body will accept this kidney and that recovery will be swift and successful. I am in awe of what Zach is doing, and have goosebumps thinking of the life(s) that will be forever changed because of this amazing gift.<br /><br />Below is part of an email from Suzi with a little more information about the surgery. When I was thinking of what I could do to support them, I knew that what was the biggest support to us through all of this was our amazing family and friends, and the power of your prayers. So pause today and say a prayer for Zach and Suzi, and for the recipient of Zach's kidney.<br /><br /><span style="color: rgb(51, 153, 153);">++++++++++</span><span style="color: rgb(51, 153, 153);"><br /><br />Many of you may (or may not know) that Zach is donating a kidney. We received a call last week letting us know that the date is set for Feb. 8th...coming up soon! The kidney will be going to someone we do not know, it's called a non-directed donation or benevolent donation. Zach was tested earlier in the year to be a match for a friend, but was not a match. He then felt that since he would be willing to do it for his friend, why not for someone else? He has really felt a specific calling to do this, and is as ready as he can be for Monday's surgery and the recovery phase. </span></span> <div style="color: rgb(51, 153, 153);font-family:arial;"><span style="font-size:100%;"><br />Please pray for him in the preparation/healing, and most importantly during the surgery - Monday Feb 8th, starts around 7:45am and goes until around 11:00am. Prayer is the most powerful and meaningful thing you can do for us. Please also pray for the recipient and their family. Pray that the kidney would take and the recipient will have a positive outcome. </span></div><span style="color: rgb(51, 153, 153);font-family:arial;font-size:100%;" ><br />That's about it for now. Thanks so much for your friendship and support. We feel so loved by all of you</span><span style="color: rgb(51, 153, 153);font-family:arial;font-size:100%;" ><br /><br />suzi</span><span style=";font-family:arial;font-size:100%;" ><br /><br />++++++++++++<br /><br />Zach's blog: http://www.zachentwistle.blogspot.com/<br /></span>Sarahttp://www.blogger.com/profile/12085672328168262733noreply@blogger.com0tag:blogger.com,1999:blog-1323855517237523479.post-45290907539382973792009-12-26T13:14:00.000-08:002009-12-30T09:04:21.271-08:00No news is in fact good news.<span style="font-family: arial;font-family:arial;font-size:100%;" class="Apple-style-span" ><span class="Apple-style-span">I've started several update posts the past few weeks, but with Darren home, back to work full time and the holidays thrown in there for good measure...it has officially been a chaotic month! However, now that Christmas has passed, I have a moment to sit down (in bursts, I still do have a 3 year old) and let you all know that...Yes, it is true, no news is in fact good news. ;)</span></span><div style="font-family: arial;"><span class="Apple-style-span" style="font-size:100%;"><span class="Apple-style-span"><br /></span></span></div><div style="font-family: arial;"><span class="Apple-style-span" style="font-size:100%;"><span class="Apple-style-span">Darren has been back home for almost 3 weeks, and continues to heal. He feels a little better each day, although recovery this time around has been slow. Even with this kidney working well, the extended amount of time he was on dialysis took such a toll on his body that it could be a while before he really starts to feel normal. However, with all that his creatinine is down to 1.93 which is the lowest its been yet. Couldn't ask for a better Christmas gift!<br /><br />It's been a truly peaceful and blessed Christmas. I can't give thanks enough for Darren's recovery and the prospect of a healthy future. I'm also so thankful for the time with my family. I often think of the family of the woman who was the donor of this kidney, and through all the joy and thankfulness we feel I'm sure there is equal grief. We have an opportunity to write to her family, and I've started 100 letters in my mind...but never quite know how to articulate my gratitude. I guess I just hope that they'll find some solace in the fact that their loved one lives on through the life and health that she gave to others like Darren.<br /><br />Thanks, again, to everyone for all of your love and support. I promise to do better posting good, boring, healthy news as often as possible. ;)<br /><br /><br /></span></span></div>Sarahttp://www.blogger.com/profile/12085672328168262733noreply@blogger.com0tag:blogger.com,1999:blog-1323855517237523479.post-71139260166438347742009-12-09T22:16:00.000-08:002009-12-09T23:02:10.109-08:00Home Sweet Home (take 2)<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhNsv0ZGJfhmP-haBK0B3ClGgNbxVEO2Y-0_c-sbGzSBwd6PkrVz-rhwmf2EzIc4UsqmcEMcMzfmx09zdrDtjegJuBm_0qNKpLIHMRvNZRmFJcWmoe85xbdLPggn4bC87tsqrguA446Av4/s1600-h/home_120909.jpg"><img style="MARGIN: 0px 10px 10px 0px; WIDTH: 141px; FLOAT: left; HEIGHT: 193px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5413497280218851538" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhNsv0ZGJfhmP-haBK0B3ClGgNbxVEO2Y-0_c-sbGzSBwd6PkrVz-rhwmf2EzIc4UsqmcEMcMzfmx09zdrDtjegJuBm_0qNKpLIHMRvNZRmFJcWmoe85xbdLPggn4bC87tsqrguA446Av4/s200/home_120909.jpg" /></a><span style="font-family:arial;">Darren is home from his second week long stay at the hospital in the past 3 weeks! I think we've logged our time (and have gotten our insurance's attention). </span><br /><span style="font-family:arial;"></span><br /><span style="font-family:arial;">It is so wonderful to have him home and to know that he can pick up where he left off on healing from the surgery. He feels and looks good, it's such a blessing. This morning we got the news that his creatinine is going back down, which is such a relief. </span><br /><br /><span style="font-family:arial;">I'm happy to leave the hospital food and excitement behind us for a while, and get back to celebrating the amazing gift of having a healthy husband and Daddy at home. Our deepest gratitude to all of our faithful family and friends who have swooped in and supported us through all of this, we really have felt and appreciated your loving support. </span><br /><span style="font-family:arial;"></span><br /><span style="font-family:arial;">Glad we only have to deal with life one day at a time. ;)</span><br /><div><br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiYiEm3IWQobzTAsNpCuv7actVXNQtxy97ysgfsMfnGsu_3_apwyhwn-kp31qVsfkmJ63eZiHa85C_XCB29W74vBMvnJ5DsMJucEDsrn6wAiHDkkMxKOvixAluZQc9HTzwiSPxn0jXaYRE/s1600-h/alice&sillyface_1209.jpg"><img style="MARGIN: 0px 10px 10px 0px; WIDTH: 150px; FLOAT: left; HEIGHT: 200px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5413497945263511378" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiYiEm3IWQobzTAsNpCuv7actVXNQtxy97ysgfsMfnGsu_3_apwyhwn-kp31qVsfkmJ63eZiHa85C_XCB29W74vBMvnJ5DsMJucEDsrn6wAiHDkkMxKOvixAluZQc9HTzwiSPxn0jXaYRE/s200/alice&sillyface_1209.jpg" /></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhN0ccQZuW6TcN6O4dEDe0gDZvtegW_kuTszYkmt8g7Oqe0wV4CRLAS1MXt7_R2X0uLrlQHctW-Cyosbj8FDze1NVfOTmaivDAxslH4Fbydz1NdvKvas-Ietcdx0yEk3UAEimzx_kzN55Q/s1600-h/daddy&alice_tweetysocks_1209.jpg"><img style="MARGIN: 0px 10px 10px 0px; WIDTH: 150px; FLOAT: left; HEIGHT: 200px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5413497569621285842" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhN0ccQZuW6TcN6O4dEDe0gDZvtegW_kuTszYkmt8g7Oqe0wV4CRLAS1MXt7_R2X0uLrlQHctW-Cyosbj8FDze1NVfOTmaivDAxslH4Fbydz1NdvKvas-Ietcdx0yEk3UAEimzx_kzN55Q/s200/daddy&alice_tweetysocks_1209.jpg" /></a><br /><br /></div><div><span style="font-family:Arial;"></span></div><div><br /><br /><br /></div><div><span style="font-family:Arial;"></span></div><div><span style="font-family:arial;"><em></em></span> </div><div><span style="font-family:arial;"><em></em></span> </div><div><span style="font-family:arial;"><em></em></span> </div><div><span style="font-family:arial;"><em></em></span> </div><div><span style="font-family:arial;"><em></em></span> </div><div><span style="font-family:arial;"><em></em></span> </div><div><span style="font-family:arial;"><em></em></span> </div><div><span style="font-family:arial;"><em>Our comic relief showing off the fancy hospital socks while taking Daddy for a stroll...and "silly face" made by Darren's nurse. Oh the fun a 3 year old can find in a hospital!</em></span></div>Sarahttp://www.blogger.com/profile/12085672328168262733noreply@blogger.com2tag:blogger.com,1999:blog-1323855517237523479.post-80451866053016337822009-12-08T21:26:00.000-08:002009-12-08T21:42:04.422-08:00Results In....<span style="font-family:arial;">The results of the biopsy done on Darren's kidney came back late in the day today, and there are NO signs of rejection in his kidney! Wooohooo! Big exhale...</span><br /><span style="font-family:arial;"></span><br /><span style="font-family:arial;">Dr. Cryst, Darren's Nephrologist, said the kidney does show some damage, but most likely that's because it's such an early transplant. It's very likely any "damage" it shows now will correct itself over time. In the meantime they have put Darren on extra IV fluid (Darren has not been able to drink more than a very small amount for 5 years so it's hard for him to break that habit) and he will at the hospital again tonight. They want to ensure that all his numbers look good tomorrow, so no commitment yet as to when he'll be able to come home...However, we all will sleep better tonight knowing that his new kidney is being made welcome by Darren's body. ;) </span><br /><span style="font-family:arial;"></span><br /><span style="font-family:arial;">I know I say this every night, but thank you for all your prayers and support. We could not do this without our family and friends, you have been our rock.</span>Sarahttp://www.blogger.com/profile/12085672328168262733noreply@blogger.com1tag:blogger.com,1999:blog-1323855517237523479.post-64480847001692637472009-12-07T22:33:00.000-08:002009-12-07T23:03:07.024-08:00Results Tomorrow<span style="font-family:arial;">I just got home from the hospital (okay, I got home an hour ago but had to run around outside and thaw all our spigots and cover them....it's cold!). Darren had the biopsy done this afternoon, the procedure went well. We won't know the results until tomorrow however. He's looking and feeling good otherwise, and quite ready to leave the hospital. We've spent more time there in the last 3 weeks than we've spent at home...quite a bit more time! </span><br /><span style="font-family:arial;"></span><br /><span style="font-family:arial;">We're both feeling hopeful that his creatinine going up is a result of the medications and the Serum Sickness, not rejection. Regardless, he's in the right place right now with the right team of people strategizing solutions for him...so we're thankful for that.</span><br /><span style="font-family:arial;"></span><br /><span style="font-family:arial;">I'll put up a post tomorrow once we get the results of the biopsy. I'm renewed after seeing him tonight, he just looks so much better...and I'm thankful for his restlessness in the hospital, that means he feels good enough to not be there anymore (the hospital is a wonderful place...until you feel better, then all you want to do is get out of there!)</span><br /><span style="font-family:Arial;"></span><br /><span style="font-family:Arial;">Thank you all for your faithful prayers and support for us. We feel every bit of it, and can't thank you enough...we are humbled and overwhelmed by the love we have experienced through all of this. </span>Sarahttp://www.blogger.com/profile/12085672328168262733noreply@blogger.com0tag:blogger.com,1999:blog-1323855517237523479.post-6620839332559451212009-12-06T10:27:00.000-08:002009-12-06T11:38:28.733-08:00The Roller Coaster Continues<span style="font-family:arial;">After some good news on Friday it appears we are back on the roller coaster. Darren's creatinine came back up again yesterday, and some more again today to 3.3. They think that one of his anti-rejection drugs is the culprit (this particular drug can actually damage the kidney if he gets too much of it, so it's monitored closely). They've backed off on this drug in the hopes that it will correct itself, but it hasn't yet. </span><br /><span style="font-family:arial;"></span><br /><span style="font-family:arial;">Therefore Darren will continue to stay at the hospital and tomorrow they'll do a biopsy of the kidney to see if there are any signs of rejection. That's the only true way to tell if the kidney is okay or not. </span><br /><span style="font-family:arial;"></span><br /><span style="font-family:arial;">The Serum Sickness has gotten much better. Darren is able to walk now and the pain is under control, so we're thankful to be on the upside of that issue at least. </span><br /><span style="font-family:arial;"></span><br /><span style="font-family:arial;">This has all felt like such a setback, and our hearts are heavy with the news this morning. Please pray for not only the healing of Darren's body and kidney, but for his spirits too. It's been a very trying week and although the care he has received has been wonderful...hospitals can be a depressing place...particularly with the waiting. Please also keep me in your prayers, it is hard to be on the sidelines. Even though it feels like life has stopped, it continues to go on and all the stresses of the day to day weigh heavily on me when I reenter reality and realize how far behind we are on everything. I've missed a lot of work, have maxed out my paid time off and have all the millions of day to day tasks hovering over my head at the moment. I know everything will work out, God is so faithful and we are so blessed...we continue to find our strength in Him. "Nothing is impossible with God." (Luke 1:37)</span><br /><span style="font-family:Arial;"></span><br /><span style="font-family:Arial;">Thanks again to all of you for your continued love and support. </span>Sarahttp://www.blogger.com/profile/12085672328168262733noreply@blogger.com4tag:blogger.com,1999:blog-1323855517237523479.post-54894016721152066912009-12-04T15:53:00.000-08:002009-12-04T16:14:10.437-08:00Heading in the Right Direction<span style="font-family:arial;">Good news today, Darren's creatinine has started to go back down. It got up to a 2.7 yesterday and came down to 2.4 today. There had been talk of doing a kidney biopsy to check for signs of rejection, but since the creatinine is coming down and the donor specific antibody test came back negative they feel comfortable giving it another day of watching/waiting.</span><br /><span style="font-family:arial;"></span><br /><span style="font-family:arial;">The steroids they started Darren on yesterday for the Serum Sickness have started to make a difference today. He has regained movement in his hands and arms, not 100% but much much better than yesterday. However, the joint inflammation has gotten worse in his knees and ankles since yesterday, so that has kept him bed bound. I think since his knees and ankles were affected later than his upper body, they might just be behind the curve a little. (That's my professional hospital rat opinion...and to think, I didn't even go to medical school...)</span><br /><span style="font-family:arial;"></span><br /><span style="font-family:arial;">They are going to keep him here until he has better mobility, the pain is under control and they're sure his kidney function is normal....all this could happen by tomorrow or Sunday. I am aching for some normalcy in our lives, enough of the excitement for a while!</span><br /><span style="font-family:arial;"></span><br /><span style="font-family:arial;">I'm very thankful that he's starting to feel better, and extremely thankful that it appears his body is not rejecting the kidney... Now if we could just keep ourselves out of the hospital for a while, and me off the hospital cot and hospital food...my body would be grateful. ;)</span><br /><span style="font-family:Arial;"></span><br /><span style="font-family:Arial;">P.S. Our official physician count is now up to 12...and surprisingly enough, I could probably name all of them if asked (but I can't tell you what day it is....I guess that's a fair trade). </span>Sarahttp://www.blogger.com/profile/12085672328168262733noreply@blogger.com1tag:blogger.com,1999:blog-1323855517237523479.post-17368275954595224722009-12-03T16:02:00.000-08:002009-12-03T16:34:17.500-08:00Possible Answers<span style="font-family:arial;">It's been a long day of tests and talking and doctors (I think I count 9 that we've seen all multiple times) and more tests and more talking....but finally this afternoon they think they know what's going on. </span><br /><span style="font-family:arial;"></span><br /><span style="font-family:arial;">As part of Darren's post transplant treatment he underwent induction therapy with a drug called thymogloblian (most likely not spelled correctly, I don't have a nurse handy to help me;). This drug is known to cause reactions in patients, typically at the time of administering however. In Darren's case it appears he is having what's called "Serum Sickness" to this drug...meaning, his body is reacting to the foreign proteins...basically he's allergic to it. </span><br /><span style="font-family:arial;"></span><br /><span style="font-family:arial;">The joint inflammation has extended from his hands, arms, shoulders, neck now to his jaw, knees and ankles...which is awful for him, but a good indicator as to the cause. When his joint pain and weakness was only in his upper body, there was concern of this being a neurological issue (which thankfully it's not). They have put him on high potency steroids to help eliminate the inflammation, however because this is an a-typical reaction they're not sure how long before he starts to feel better and regain movement. He currently has very limited hand, arm and now leg movement so isn't able to stand or use his hands for much. It's very frustrating and very painful. </span><br /><span style="font-family:Arial;"></span><br /><span style="font-family:Arial;">They don't believe that his kidney is in trouble through all of this, but are keeping a close eye on things. His creatinine has climbed up from 1.9 to 2.6 since we've been here, but they feel the cause of that is this inflammation. Of course his kidney function and health is high on our list of things to pray about, he's not out of the woods yet.</span><br /><span style="font-family:Arial;"></span><br /><span style="font-family:Arial;">I'm really hoping that the steroids they've put him on will start to make some improvements in how he feels. This has been a real bump in the road to recovery, all of which had been going so well. </span><br /><span style="font-family:Arial;"></span><br /><span style="font-family:Arial;">I'll keep the blog updated with any new information. I think that he'll probably be here for a couple more days, hard to say...we just have to wait and see how he reacts to the medications. Thank you so much for all of your prayers and support!</span>Sarahttp://www.blogger.com/profile/12085672328168262733noreply@blogger.com0tag:blogger.com,1999:blog-1323855517237523479.post-59568562753324827652009-12-02T22:46:00.001-08:002009-12-02T23:05:19.502-08:00Prayers Needed<span style="font-family: arial;font-size:100%;" >Just when I was getting so good at writing "good news" posts... Darren was admitted to the hospital this morning with some strange symptoms. I'll keep this short for now, but will elaborate more tomorrow (once I know more).<br /><br />Last night (Tuesday), Darren started getting some very severe pain in his hands/arms/shoulders/neck and spiked a temperature. We tried to get him comfortable with some of the strong post-surgery meds we had at home, but nothing was touching the pain he was having in his hands in particular. We went to the hospital first thing this morning and along with these issues, his white blood cell count was extremely high (meaning his body was fighting some sort of battle somewhere).<br /><br />They have ruled out Neuro issues after doing an MRI this afternoon. And anything to do with the kidney rejecting or loosing function is low on the list of probabilities. That being said, they're scratching their heads as to what's going on and if the infection he has somewhere in his body has any connection to the pain and limited function in his hands.<br /><br />They put him on some antibiotics and are trying to control the pain for now. Tomorrow we'll have more results back from some of the tests they've done, and we'll be meeting with ID (Infectious Disease) for additional work ups on the source of the infection...along with joint specialists to see if they can shed any light on what's happening in his hands/arms/shoulders.<br /><br /></span><span style="font-family: arial;font-size:100%;" >He was finally somewhat comfortable this evening due to a very high dose of pain medication, so I'm hopeful he'll be able to get some rest (that goes for me too!). It's been a particularly stressful night/day because we haven't known what is wrong, and this is by far the worst pain I've ever seen Darren in (and I've seen the 8" scars on his belly and his creatinine hit the high teens).</span> <span style="font-size:100%;"><span style="font-family: arial;"><br /><br />Please keep him in your thoughts and prayers today. More soon....</span><br /></span>Sarahttp://www.blogger.com/profile/12085672328168262733noreply@blogger.com4tag:blogger.com,1999:blog-1323855517237523479.post-77498682735501807912009-11-24T09:55:00.001-08:002009-11-24T11:42:02.874-08:00More Good News!<span style="font-size:100%;"><span style="font-family: arial;">I am lagging behind a little on some great news (turns out life is a little busy when the nurses aren't doing everything for us!) </span><span style="font-family: arial;"><br /><br />Darren had his appointment at the hospital yesterday to do labs and check creatinine as well as medication levels. And...drum roll please...his creatinine is down to 3.09 (from 8.5 on Friday)!!!!! We're so thrilled with the news, the doctors feel that his creatinine should settle under the 2.0 mark which would be considered a "normal" functioning kidney. Wow.</span><span style="font-family: arial;"><br /><br />Now that his kidney is working, we just have to keep close lookout for any signs of rejection. They are constantly juggling his anti-rejection medications to find the right balance. So our prayer is that they do their job in defending this foreign kidney from Darren's very healthy immune system (ironic isn't it). Conversely, as a result of the anti-rejection medications, he is extremely immuno-compromised...therefore he is highly susceptible and defenseless to any common illnesses from a cold to the flu. If he were to get the flu, for example, they would have to pull back on his rejection meds to allow his body to defend itself, which of course isn't ideal since he needs his immune system suppressed right now in order to protect his kidney. Needless to say, I've purchased an industrial sized container of hand sanitizer and I'm not afraid to use it. ;)</span><span style="font-family: arial;"><br /><br />Darren's definitely feeling the benefits of his kidney function, despite the surgery pains and recovery. It's wonderful to see the signs of how good he's going to feel post recovery...we've so cautiously allowed ourselves to accept all that will change due to this transplant....but the possibilities are slowly seeping their way into our consciousness. How blessed we are.</span><br /></span>Sarahttp://www.blogger.com/profile/12085672328168262733noreply@blogger.com0tag:blogger.com,1999:blog-1323855517237523479.post-56034299514297880762009-11-22T21:30:00.001-08:002009-11-22T22:12:56.057-08:00Home Sweet Home<span style="font-size:100%;"><span style="font-family: arial;">It has been wonderful to be home. We arrived around 7:30 Friday night, just in time to have a cupcake and celebrate Darren's birthday, what a birthday gift. So far things seem to be going well, he feels a little better each day and his kidney is definitely doing at least one part of its job (every hour on the hour!) </span><span style="font-family: arial;"><br /><br />Today, Sunday, was spent at the hospital doing the last of the induction therapy sessions. He'll be back again tomorrow for labs and medication adjustments, then again on Wednesday and Friday this week. I'm pretty sure his lab appointments will be about 3 days a week for a month or so, then slowly taper off if things are going well. We don't know what his current creatinine level is, so we're anxious to find out tomorrow. They said it could take a week or more to creep down to the level it needs to be (under 2.0), so continue to pray that it keeps doing its job and Darren's body accepts this new organ. </span><span style="font-family: arial;"><br /><br />It's really hard to believe that a week ago today was Darren's first day out of surgery, so much has changed. Not only getting a new lease on life, but the small things too...like how much better he feels and looks after such a major surgery. We continue to be in awe at all that has transpired in such a short amount of time, his life has been forever changed by the choice of one person...it's humbling to think about. </span><span style="font-family: arial;"><br /><br />I don't have the kind of pensive time I had at the hospital, coming home means back to life... full swing (and then some!). But I will continue to update this blog as we get news...especially since all of you are now such kidney experts (by force). Thank you for your continued support and prayers, I really can't begin to express how thankful we are for all of you.<br /><br /><br /></span></span><iframe allowfullscreen='allowfullscreen' webkitallowfullscreen='webkitallowfullscreen' mozallowfullscreen='mozallowfullscreen' width='320' height='266' src='https://www.blogger.com/video.g?token=AD6v5dyhwcWp39mEE3qcNe0mYJ8ocuFijnXesg7u2Bx6F_-a5hEj07-52Gv6K9rYS728cO3lh9Bj1aIGwsdqwcV86g' class='b-hbp-video b-uploaded' frameborder='0'></iframe>Sarahttp://www.blogger.com/profile/12085672328168262733noreply@blogger.com1tag:blogger.com,1999:blog-1323855517237523479.post-7954104837639341532009-11-20T10:36:00.000-08:002009-11-20T10:56:11.697-08:00Day 6: The Best Birthday Present<span style="font-family:arial;">I can not think of a better birthday present for Darren today (or anyone really)...health and happiness. Its what we always wish for people, right. Well...today, on Darren's 41st birthday, he gets that chance again. (He's had the happiness...but the health is a good addition.) </span><br /><br /><div><div><span style="font-family:arial;"></span></div><div><span style="font-family:arial;">The news this morning continues to be good. His new kidney is slowly doing more and more. His creatinine is down to 8.5 from 10.5 yesterday, slow but steady. He has the 4th dose (out of 5) of a very strong anti-rejection med today that's done through his central line. The induction therapy lasts for 5 to 6 hours, so we should be heading home late afternoon/early evening as planned. Yay! He'll probably sleep most of the day due to the side effects of this therapy, but after being woken up every hour during the night...it will be well deserved sleep. Other than a little sleep deprived, he is really doing great and feeling stronger each day.</span></div><br /><div><span style="font-family:arial;">We'll be back again every other day for lab work and follow up appts for at least a month, then the appts will slowly taper off as long as things are going smoothly. The first 6 months are the most critical, if rejection is going to happen it will typically be in this time period. </span></div><br /><div><span style="font-family:arial;"></span></div><div><span style="font-family:arial;">We can't wait to go home...and more importantly, see Alice and Fezzik. What a wonderful birthday this will be with a new lease on life. </span></div><br /><div><span style="font-family:arial;">Love to all of you and thank you for your continues prayers and support. </span></div><br /><div><span style="font-family:Arial;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjiYyiyagIw1Z24z8xUg_BU9QaP1Y23VlFquCRX_WxY8coBwZFVRDfJIOjY45949IHH-GQWQEAKWlX038BWvZwZOiTPl6rxriJzJGOgbm-F2f5nKbIFOiecuU1txXk3ADq9iyTVU0QdBy0/s1600/FallRisk_111909.jpg"><img style="MARGIN: 0px 10px 10px 0px; WIDTH: 150px; FLOAT: left; HEIGHT: 200px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5406259457356120210" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjiYyiyagIw1Z24z8xUg_BU9QaP1Y23VlFquCRX_WxY8coBwZFVRDfJIOjY45949IHH-GQWQEAKWlX038BWvZwZOiTPl6rxriJzJGOgbm-F2f5nKbIFOiecuU1txXk3ADq9iyTVU0QdBy0/s200/FallRisk_111909.jpg" /></a></span></div><br /><div><span style="font-family:Arial;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi9S0HnfWbgW40DAWtIM6-m9ifXDWMq4gWdKxYsOuUtaK7IKQRRGb79BUMEPmcqYxJ6CDQpaiZtCdx3WihFXm4d4m5LKqiX7AtheggCA6sLYvahNv28mAr06Sz4aw067oV5sxvq7I48dg0/s1600/themeds_112009.jpg"><img style="MARGIN: 0px 10px 10px 0px; WIDTH: 200px; FLOAT: left; HEIGHT: 150px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5406260269886368674" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi9S0HnfWbgW40DAWtIM6-m9ifXDWMq4gWdKxYsOuUtaK7IKQRRGb79BUMEPmcqYxJ6CDQpaiZtCdx3WihFXm4d4m5LKqiX7AtheggCA6sLYvahNv28mAr06Sz4aw067oV5sxvq7I48dg0/s200/themeds_112009.jpg" /></a></span></div><div><span style="font-family:Arial;"></span> </div><div><span style="font-family:Arial;"></span> </div><div><span style="font-family:Arial;"></span> </div><div><span style="font-family:Arial;font-size:85%;"><em>Darren holding his "fall risk" star right before they upgraded him to a "no fall risk"...along with a few of the PCT's....and a photo of the many many meds he'll be on for a long time.</em></span></div></div>Sarahttp://www.blogger.com/profile/12085672328168262733noreply@blogger.com2tag:blogger.com,1999:blog-1323855517237523479.post-78556111128525125042009-11-19T09:38:00.000-08:002009-11-19T15:20:40.898-08:00Day 5: Playing Nice<span style="font-family:arial;">It's only 10am, but we've got the news we've been waiting for! Darren's new kidney has started waking up and, as of this morning, his creatinine is down to 10.5 (from 12.4 yesterday). Wonderful wonderful news!</span><br /><span style="font-family:arial;"></span><br /><span style="font-family:arial;">Darren will stay in the hospital until tomorrow, Friday, late afternoon/early evening. Then home sweet home! Of course we'll be back again on Sunday, Monday, Wednesday, Friday...and so on, but he should continue to feel better and better, stronger and stronger. </span><br /><span style="font-family:arial;"></span><br /><span style="font-family:arial;">The prayer now is for continued function (we're not out of the woods yet) and the biggest foreseeable issue now is rejection. They will be monitoring for donor specific antibodies regularly, and of course we'll be watching for signs of rejection...but with his history, we know Darren's immune system is strong...so we're praying that his body will make an exception and take it easy on this one. </span><br /><span style="font-family:arial;"></span><br /><span style="font-family:arial;">Thank you, again, for all of your continued support. We are so blessed by you.</span><br /><br /><div><div><div><br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEivLAG69OxYbVMFyD43CNy7MFI_RyMJmclHtyrL81y7rIIBQGQeVEj79iKqzI5HzwTdq98FifyVzEdSvbZbG5PeBfjxffhoc1T2q6mdOJ3jeUMZYd_xCH5pGpMPk-grydR1l07P4-BOpdQ/s1600/Darren_111909.jpg"></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjLE8G9Z1h1s-mz9FgS0Dlm3wUzHNs7Y1hMcnHiZ2yBHks3XrbCyIgts_6_e9xWGv0b65_gSDXSe14b7FW9thXCIKoquBtHlLhfeWmrnPSV-P_N08GOnswdCwsdBcIbmYZETLZp73yVur0/s1600/Darren_111909.jpg"><img style="MARGIN: 0px 10px 10px 0px; WIDTH: 150px; FLOAT: left; HEIGHT: 200px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5405958011375838994" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjLE8G9Z1h1s-mz9FgS0Dlm3wUzHNs7Y1hMcnHiZ2yBHks3XrbCyIgts_6_e9xWGv0b65_gSDXSe14b7FW9thXCIKoquBtHlLhfeWmrnPSV-P_N08GOnswdCwsdBcIbmYZETLZp73yVur0/s200/Darren_111909.jpg" /></a><br /><br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh91FE_mEXFP3mZVR6YysyoA6rMIjW-anGXQi2q8rwUg0e-HfRHK5a2iRJ74tmLBgG9SspwSJK7gUfkYaO9rK-FMNYX1Z1rV6fK640SiM9tLeXQ3dOB93UaJEORwyniUFpbA1ZeLhk26L0/s1600/Darren&Sara_111909.jpg"><img style="MARGIN: 0px 10px 10px 0px; WIDTH: 200px; FLOAT: left; HEIGHT: 150px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5405956613505581026" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh91FE_mEXFP3mZVR6YysyoA6rMIjW-anGXQi2q8rwUg0e-HfRHK5a2iRJ74tmLBgG9SspwSJK7gUfkYaO9rK-FMNYX1Z1rV6fK640SiM9tLeXQ3dOB93UaJEORwyniUFpbA1ZeLhk26L0/s200/Darren&Sara_111909.jpg" /></a><br /></div><div><span style="font-family:Arial;"></span></div><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj6WPIJn22wV4zq2X-6o0FhujG3xJv5oZ2Sifs1cJdboDDqBTin0ck-tlIQ8DOcm7d1sqYaeA-68CS9iWKeaKMxxRpMfs3LDav_lBzImqx6wtwhgPHRGClQYLTHAqY4Dj4c2Wl1wERHLck/s1600/Darren_111909.jpg"></a><br /><br /><br /></div><div> </div><div><em><span style="font-family:arial;font-size:85%;">He's looking like himself again!</span><br /></em></div><div><span style="font-family:Arial;"></span></div></div></div>Sarahttp://www.blogger.com/profile/12085672328168262733noreply@blogger.com3tag:blogger.com,1999:blog-1323855517237523479.post-63794724803134072872009-11-18T12:06:00.000-08:002009-11-19T09:32:49.866-08:00Day 4: Starting off pretty good<span style="font-family:arial;">Today, so far, has been an encouraging day. It's only half over, but thought I would share what's happened so far.<br /><br />The good news is that Darren's creatinine is starting to trend down (creatinine in a person with normal kidney function would be around .5 - 1.0, Darren's is 12.5 currently down from 12.8 yesterday). It hasn't dropped very much, but his doctors said that this is the first sign that his new kidney is starting to work. Typically, once the downward trend starts it keeps going. Encouraging news!<br /><br />However, Darren isn't feeling all that great. A creatinine of 12.5 is still quite high, which means that on top of the pains of surgery, he is experiencing flu like symptoms that are wiping him out. As his creatinine continues to drop however (pray pray pray), he should start to perk up more and be less drowsy.<br /><br />The other very exciting thing that has happened today (and you're going to get a sense of my world here for a minute...) is that they took the catheter out of his bladder this morning and Darren has peed for the first time in 5 years.... I see a happy future of reminding him to put the toilet seat down, which I haven't had to do in many many years. ;)</span>Sarahttp://www.blogger.com/profile/12085672328168262733noreply@blogger.com3tag:blogger.com,1999:blog-1323855517237523479.post-7470837702868294822009-11-17T21:33:00.000-08:002009-11-17T21:53:43.938-08:00Day 3: A Little More of the Same<span style="font-family:arial;">Today has felt a little like groundhogs day...a little more of the same (except sunny outside, and that goes a long way!). Darren's feeling a little better and stronger, he got to actually eat some food today and has been more alert. </span><br /><span style="font-family:arial;"></span><br /><span style="font-family:arial;">His kidney function is a little better, but still hasn't kicked in to do what it needs to do. Although it is working to process fluids, it hasn't yet really started to do all the other functions it needs to do to really make a marked difference in how he feels. The doctors reassure us that this can happen in these circumstances, that it can take a little while for the new kidney to acclimate and really start working...so we continue to be patient.</span><br /><span style="font-family:arial;"></span><br /><span style="font-family:arial;">If things don't change in the next couple days they mentioned that a biopsy of the kidney might be done. This would show if there are any early signs of rejection starting to happen. The only reason they would do this at this juncture is because of Darren's history of rejection (sounds like a movie title "History of Rejection" ;)....not because they are necessarily assuming that rejection is happening. All the other signs point to a normal start. </span><br /><span style="font-family:arial;"></span><br /><span style="font-family:arial;">Thank you again for all the well wishes, love, support, calls, emails, texts, flowers, homemade cards and most importantly prayers. I can't tell you how much it lifts our spirits to hear/read your words of support...and know that our every moment is covered in prayer. We feel your love and support, thank you. </span>Sarahttp://www.blogger.com/profile/12085672328168262733noreply@blogger.com1tag:blogger.com,1999:blog-1323855517237523479.post-867680827638711022009-11-17T11:08:00.000-08:002009-11-17T13:36:45.625-08:00Our Brave Little Girl<span style="font-family:arial;">Many of you have asked how Alice is doing through all of this, so I thought I'd do a post about our little trooper. </span><div><br /><div><span style="font-family:arial;">She has been staying with "Grandmapa" since Friday night, which has been a total God-send. I'm so thankful to not be worried or concerned about her, she couldn't be happier than to be with her doting Grandma and Grandpa right now (well, I guess I do have a concern...that she's not going to want to come home!). My parents dropped everything to scoop her up and acclimate their lives to her three year old whimsy needs (of which there are many). I am so incredibly grateful for my family...these are the times when we are reminded how blessed we are. And I feel almost guilty for having such amazing, supportive, loving, knowledgeable parents and siblings to gather my strength and support from, we are so blessed.</span></div><br /><div><span style="font-family:arial;">Alice has grown up knowing about "Daddy's machine," seeing the needles and tubes, knowing that blood goes through the machine to "be washed" and that..."noooo, we don't touch Daddy's machine...." She also knows about kidneys and that Mommy and Alice have two, but Daddy's kidneys broke. (Or, I should say, "kidanees.") She knows Daddy has needed a kidney to make him feel better, and has even offered up one of hers as a solution. (She did the math!) ;) So, all this to say, when we got the call about a possible match with the Transplant Coordinator on Friday...Alice squealed "Yiippppeeeee!" </span></div><br /><div><span style="font-family:arial;">In some respects she's got a good foundation for all of this, for seeing Darren in the hospital and understanding...as much as her brain will allow, that this is all good and temporary. She came to the hospital on Sunday, the day after his surgery, to visit with my parents. She was full of humor (as the photos can attest to), happiness and...of course...questions (but what 3 year old doesn't have questions, "why, why, why"). She wondered a little why she had to be so gentle with Daddy, he's usually the one she gets to run and jump at full steam...but she gets it. </span></div><br /><div><span style="font-family:Arial;">Life will be different for a little while during Darren's recovery at home and our many many trips to the hospital in the next weeks and months, but if all goes well...life will be different in a much better way for all of us too. </span></div><br /><br /><div><span style="font-family:Arial;"></span></div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhpxCR02HF0nhDGy5oBvE81Ah4kKTpSQo7FroyO8RswfWDVFLpLdIYIo8e47l0GSkF65UVCiMEiSXPht5-UXD9zaiaKWQzKOyTSHKpwFCFN9g8bBDdLMzLT1YFocCmhKRnhedpuO4RdMv4/s1600/daddy&alice_111509.jpg"><img style="MARGIN: 0px 10px 10px 0px; WIDTH: 207px; FLOAT: left; HEIGHT: 280px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5405185687555914338" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhpxCR02HF0nhDGy5oBvE81Ah4kKTpSQo7FroyO8RswfWDVFLpLdIYIo8e47l0GSkF65UVCiMEiSXPht5-UXD9zaiaKWQzKOyTSHKpwFCFN9g8bBDdLMzLT1YFocCmhKRnhedpuO4RdMv4/s320/daddy&alice_111509.jpg" /></a> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhMexcFghk6S5pRYDKUvhsfDQQpK_hrqpOBK-Uq5eO-3QoKd6ejfJmOZSMgIek5-t9Kw76pM4poRLCozmb_Hhx7FGKAdOcZ4CMohTjSv6fXPfdYhD6lUojdK5QoClfx9IKS0zmjuRrzCyg/s1600/mommy&alice_111509.jpg"><img style="MARGIN: 0px 10px 10px 0px; WIDTH: 206px; FLOAT: left; HEIGHT: 281px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5405186731836165522" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhMexcFghk6S5pRYDKUvhsfDQQpK_hrqpOBK-Uq5eO-3QoKd6ejfJmOZSMgIek5-t9Kw76pM4poRLCozmb_Hhx7FGKAdOcZ4CMohTjSv6fXPfdYhD6lUojdK5QoClfx9IKS0zmjuRrzCyg/s320/mommy&alice_111509.jpg" /></a><br /><br /><div><span style="font-family:Arial;"></span></div><br /><br /><div><span style="font-family:Arial;"></span></div><br /><br /><div><span style="font-family:Arial;"></span></div><br /><div><span style="font-family:arial;font-size:85%;"><em>Alice checking on Daddy and telling him about all her adventures with Grandmapa... And finding the hospital tape with Mom. ;)</em></span></div></div>Sarahttp://www.blogger.com/profile/12085672328168262733noreply@blogger.com2tag:blogger.com,1999:blog-1323855517237523479.post-42308637433602745202009-11-16T22:53:00.000-08:002009-11-16T23:53:22.883-08:00Day 2: Settling In<span style="font-family:arial;">I can't tell you exactly what month it is, day it is, what time it is...or even what I did all day...but I can tell you how much Darren's new kidney "output" each hour of the last 24.</span><br /><span style="font-family:arial;"></span><br /><span style="font-family:arial;">The day started off a little slow..well, slow for Darren's body that is (if you've ever stayed in a hospital, mornings are anything but slow...I have mastered being able to jump out of my cot and fold it up in seconds flat, all while remaining asleep...it's really an acquired skill.) His kidney function remained flat for most of the day. Not really doing any worse, but not doing any better. An ultrasound showed all normal blood flow, which was a relief...but its still a bit sleepy from its journey. </span><br /><span style="font-family:arial;"></span><br /><span style="font-family:arial;">Around 11am he was given what's called induction therapy with a heavy dose of a very strong anti-rejection medication. Along with that medication he received some allergy medication to counter any side effects...however, what that did was knock him out completely for the entire day. Not a bad thing, he definitely needed the rest....but hard for me. I really hadn't gotten much of a glimpse of <em>my</em> Darren back, which gets a little depressing after a while.</span><br /><span style="font-family:arial;"></span><br /><span style="font-family:arial;">However, around 7pm he started to wake up...and so did his kidney. More labs were pulled and the creatinine level, which measures kidney function (the short description), was holding steady, even slightly down. Darren and I took a long walk down the hall, he enjoyed his first food of chicken broth since Friday...and I got to see <em>my</em> Darren again. The one that makes me laugh and tells me how beautiful I am (and that's a stretch right about now...seriously). </span><br /><span style="font-family:arial;"></span><br /><span style="font-family:arial;">I don't think that I can begin to express how proud I am of him, and how incredibly brave he is in the face of all of this. He's far from over the hurdle, in pain and discomfort, being poked and prodded...yet, he smiles and jokes and doesn't complain. </span><br /><span style="font-family:arial;"></span><br /><span style="font-family:arial;">I'm encouraged by his progress this evening and pray tomorrow will bring more good news, even if it's just "holding steady" news. Our blessings are many, we feel His love and presence each step we take.</span><br /><span style="font-family:Arial;"></span><br /><span style="font-family:Arial;">Praise God. </span>Sarahttp://www.blogger.com/profile/12085672328168262733noreply@blogger.com2tag:blogger.com,1999:blog-1323855517237523479.post-55687114038080196882009-11-15T22:57:00.000-08:002009-11-15T23:38:27.658-08:00Day 1: Getting to Know You<span style="font-family:arial;">I'm not sure I have ever been more grateful to be sitting on a cot in a hospital room...well, maybe one other time seven years and two days ago. </span><br /><span style="font-family:arial;"></span><br /><span style="font-family:arial;">Today has been a day of watching, waiting, resting and praying. Darren transferred from ICU this morning to a patient room on the transplant floor of the hospital. His new kidney is functioning, but has started off a little sluggish. An early ultrasound showed that everything was in working order, so the wait is on to see when it will wake up a little more.</span><br /><span style="font-family:arial;"></span><br /><span style="font-family:arial;">This time around has been quite a bit different than the last. When Cynthia gave Darren one of her kidneys, it didn't miss a beat. It started functioning strongly immediately, and Darren started feeling good right out of the gate. However this time, coming off of 5 years of dialysis, it's been a little harder for his body to bounce back from the intensity of the surgery. Additionally, this organ not coming from someone in the surgical suite next to him...had a lot more time and distance to travel before it had a chance to start working again. In essence, it's been a day of "meet and greet" for Darren's body and this new organ (and I'm hoping for no awkward silences!)</span><br /><span style="font-family:arial;"></span><br /><span style="font-family:arial;">We have been reassured that this slow start can happen, and we feel in VERY good hands here. The care has been above and beyond, they even humor all my questions, note taking and reading the labs over their shoulders (I know just enough to be dangerous, not enough to not ask dumb questions). </span><br /><span style="font-family:arial;"></span><br /><span style="font-family:arial;">Continue to pray for the function of the kidney, and for Darren's body to accept this organ. These things are at their greatest risk right now. More very soon, all our love!</span><br /><span style="font-family:arial;"></span><br /><span style="font-family:arial;">P.S. I spent an hour reading Darren all of your comments and messages from the last two days. He was overwhelmed with the love and support, it truly has lifted our spirits knowing what a blessing we have in our family and friends. Thank you!</span>Sarahttp://www.blogger.com/profile/12085672328168262733noreply@blogger.com0tag:blogger.com,1999:blog-1323855517237523479.post-88196120233949849562009-11-14T21:48:00.000-08:002009-11-15T08:20:52.066-08:00November 14th - a new day to remember<span style="font-size:100%;"><span style="font-family:arial;">After several m</span></span><span style="font-size:100%;"><span style="font-family:arial;">onths of blatantly ignoring my blog updates, how shocked you must be to see a second post...ju</span></span><span style="font-size:100%;"><span style="font-family:arial;">st a day after the last! However, in the last 24 hours I think I have enough material to write, well, 24 posts...so I'll keep this to the point (mainly because I need sleep), and will rejoice to let this post be one of happiness, praise and thankfulness.<br /><br />Yesterday (Friday, November 13th) we received the coveted </span></span><span style="font-size:100%;"><span style="font-family:arial;">call from Virginia Mason Transplant Coordination Team saying that there was a possible kidney match for Darren. Exciting...well yes, however quite cautiously exciting. (This is the 4th call like this we have received over the past 5</span></span><span style="font-size:100%;"><span style="font-family:arial;"> years, and as you can probably guess...the last 3 have not turned out well.) After many hours of waiting, the call came in (around 5:23pm..just roughly) that this kidney was a match (insert mumbo jumbo crossmatch, antigen, etc. language here I can't articulate at the moment). And not only was it a match, but it was a very good match...and not only was it a very good match, but Darren was first in line. After a few more hours of limbo, we were told at 9pm that we needed to be to the hospital at 11pm that night for pre-op...and to play the wait and see game.<br /><br />After some scrambling, random packing and parents flying through the night to come be with Alice... We made it to Virgina Mason late last night hoping, waiting, preparing for what could be.<br /></span></span><br /><span style="font-size:100%;"><span style="font-family:arial;">Let me back up for a minute... This kidney is not from a living donor or someone we know, this is from someone who made their wishes clear to be an organ donor should something unforeseeable happen to them. I can tell you, being on this side of things, the emotional conflict of this tragic circumstance happening to one family...mixed with the hopefulness of what it can do for another, is truly an overload of emotion. But what I do know–as the admittance nurse chuckled to see that Darren was an organ donor–is that if something were to happen to me...or God forbid, someone I love...I can only hope that knowing more lives were saved from one untimely tragic death is of some small comfort. We don't know all the circumstances of what happened, or why it happened to this organ donor...but I know that she has now saved at least one very important life. And that she was a match, a very good match, to Darren...for whatever that's worth.<br /><br />Fast forward one very long night shuttling through the hospital, getting hooked up to IVs, chest X-rays, uncomfortable chai</span></span><span style="font-size:100%;"><span style="font-family:arial;">rs, 3am questions about the same thing we were asked at 2am and 1am... AND news came in at 8am that the kidney had arrived, was indeed perfect and surgery was scheduled for 9am, Saturday, November 14th. Seven years and one day from the last transplant that transformed our lives.<br /><br />After 3.5 hours of surgery I got word (with my faithful waiting room team: Christina and Cynthia) that Darren was out of surgery, everything went perfectly...and...the kidney was already working in Darren's body. A-men.<br /><br />I'm home tonight, trying (so far not hard enough) to get a good night sleep as Darren is well cared for in the ICU at</span></span><span style="font-size:100%;"><span style="font-family:arial;"> Virgina Mason. Yesterday I grieved the loss of the kidney Cynthia so willingly gave seven years ago...and today, I cautiously let seep in that Darren has gotten another chance. The road has just begun... his body still has some adjusting to do, the mixture of intricate anti-rejection drugs has to be perfected, the kidney has to continue to function...but, we're here, with another chance.<br /><br />Darren will be in the hospital for 4 or 5 days, and I will continue to update this blog (now that I have such great news!) with his status. Like I said, more hurdles are surly to come and the recovery is not immediate, but it is with trusting hearts that we continue this venture.<br /><br />Off to bed...but not before I unplug the dialysis machine that hums in our room each night. I'll put him to rest, my pray</span></span><span style="font-size:100%;"><span style="font-family:arial;">er is that his job is done.<br /><br /></span></span><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhrCXQn-Jn4gXl4Geqi8N8NnLTKujhxgEC55613D0CHXnVmOc0Hy4_5ETnYyfjI-NHzLyeDUcpdOq4jUelJTVx_WngIfL8gzkk4urTdz9vIVZ-40r4qqanKJIdrASm0bjs2AZ3ftSeCo1Y/s1600-h/IMG_0607.JPG"><img style="margin: 0pt 10px 10px 0pt; float: left; cursor: pointer; width: 230px; height: 172px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhrCXQn-Jn4gXl4Geqi8N8NnLTKujhxgEC55613D0CHXnVmOc0Hy4_5ETnYyfjI-NHzLyeDUcpdOq4jUelJTVx_WngIfL8gzkk4urTdz9vIVZ-40r4qqanKJIdrASm0bjs2AZ3ftSeCo1Y/s320/IMG_0607.JPG" alt="" id="BLOGGER_PHOTO_ID_5404365077104092930" border="0" /></a><br /><br /><span style="font-size:100%;"><span style="font-family:arial;"><br /><br /><span style="font-style: italic;">Pre-surgery self-portrait at 1</span></span></span><span style="font-size:100%;"><span style="font-family:arial;"><span style="font-style: italic;">am, November 14th — excited, nervous, hopeful...tired...</span><br /></span></span>Sarahttp://www.blogger.com/profile/12085672328168262733noreply@blogger.com7tag:blogger.com,1999:blog-1323855517237523479.post-31362686455398480242009-11-13T14:42:00.000-08:002009-11-13T15:06:43.838-08:00November 13th<span style="font-size:100%;"><span style="font-family:arial;">On this day 7 years ago, my best friend gave my husband one of the most amazing gifts one could give of themselves...a kidney. Each year as this day approaches, we all get together and reflect on that day and how it really truly transformed all of our lives. Although the kidney ultimately rejected two short years later, November 13, 2002 will forever be etched in our lives as a life changing moment for all of us...a moment where we suddenly realized what was possible,...all thanks to my very brave friend, Cynthia.</span><span style="font-family:arial;"><br /><br />I know I haven't updated this </span></span><span style="font-size:100%;"><span style="font-family:arial;">blog in a long while, mostly because there hasn't been much to update...Darren remains on dialysis and we remain waiting for that rig</span></span><span style="font-size:100%;"><span style="font-family:arial;">ht match to come along. So, </span></span><span style="font-size:100%;"><span style="font-family:arial;">I asked Cynthia this week to write down some of her feeling about today for me to share...here's what she wrote: </span></span><span style="font-size:100%;"><br /><br />•••••••••••</span><span style=";font-family:arial;font-size:100%;" ><br /></span><p style="color: rgb(0, 102, 0); font-family: arial;font-family:arial;" class="MsoNormal"><span style="font-size:100%;">November 13<sup>th</sup> is</span><span style="font-size:100%;"><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjYlJlhdhGeus-vwK84O-AoQah6aZvfRWgpMZyBSsdt-FgUduiiFyX3CG3oa2wPbtHLQ0HqmZhbIeaPc1S9V4xT2eNretzku5pC1S_xip3M-XBVS7CCQTbUHDBCrnrb8fsJW8kechgeO6Y/s1600-h/darren.jpg"><img style="margin: 0pt 10px 10px 0pt; float: left; cursor: pointer; width: 177px; height: 236px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjYlJlhdhGeus-vwK84O-AoQah6aZvfRWgpMZyBSsdt-FgUduiiFyX3CG3oa2wPbtHLQ0HqmZhbIeaPc1S9V4xT2eNretzku5pC1S_xip3M-XBVS7CCQTbUHDBCrnrb8fsJW8kechgeO6Y/s320/darren.jpg" alt="" id="BLOGGER_PHOTO_ID_5403726371185983986" border="0" /></a></span><span style="font-size:100%;"> a big day for me—happy and </span><span style="font-size:100%;">sad. </span></p> <p style="color: rgb(0, 102, 0); font-family: arial;font-family:arial;" class="MsoNormal"><span style="font-size:100%;">It’s a <i><span style="font-style: italic;">happy</span></i> day </span><span style="font-size:100%;">because it is the anniversary (20 years now!!) of my mother-in-law being cancer free. My mother-in-law and father-</span><span style="font-size:100%;">in-law are going to Cabo for the week to CELEBRATE health! I can’t imagine my world without her, I love her like she’s my own mother and she is such an awesome part</span><span style="font-size:100%;"> of life for my kids… </span></p> <p style="color: rgb(0, 102, 0); font-family: arial;font-family:arial;" class="MsoNormal"><span style="font-size:100%;">It’s a <i><span style="font-style: italic;">sad</span></i> day beca</span><span style="font-size:100%;">use it’s also the anniversary (7 years) of when I donated my kidney to Darren. I remember on the first anniversary his mom sent me beautiful flowers and wrote me a card thanking me for saving her son. I never liked the “You are such </span><span style="font-size:100%;">an angel/hero for donating your kidney!” comments from people b/c that’s not what it was about at all. My friend had a need and I was able to help him out. It was as simple as that really! November 13, 2003 was the one year anniversary for celebrating and being thankful for friendship, life and for Darren’s health. </span></p> <p style="color: rgb(0, 102, 0); font-family: arial;font-family:arial;" class="MsoNormal"><span style="font-size:100%;">That all changed when the kidney failed and it breaks my heart that Darren is back on the list and back on </span><span style="font-size:100%;">dialysis and back to needing anot</span><span style="font-size:100%;">her kidney. I wish I was a freak of nature and had been born with three kidneys because I would give him another one without any hesitation.</span></p><p style="color: rgb(0, 102, 0); font-family: arial;font-family:arial;" class="MsoNormal"><span style="font-size:100%;">I remember before I had kids my mom told me lies, er, stories about how childbirth wasn’t that bad and really she didn’t remember much pain. HA! I will always remember the pain of childbirth </span><span style="font-size:100%;">J</span><span style="font-size:100%;"> So I guess I should be honest and I shouldn’t say “it was as simple as that” b/c I realize it was a big deal. It did hurt, I was in pain for a week or so and I couldn’t lift my chunky 11 month old son or my three year old daughter for four weeks. The only reason I can say “it was as simple as that” is because I had a wonderful support system—help with the kids, help with meals, etc. Plus every day of those few weeks while I was healing I would talk to Darren on the phone and he’d give me an update on his creatinine level and I could </span><span style="font-size:100%;">celebrate and remember why I wasn’t feeling so great. I was reminded every day that my pain was so worth it! What an awesome thing that I got to be part of—giving Darren his life back, giving Sara her husband back. Seriously, I am thankful to have had the chance to be part of that. </span></p> <p style="color: rgb(0, 102, 0); font-family: arial;font-family:arial;" class="MsoNormal"><span style="font-size:100%;">So now I feel helpless because I did what I could and it worked for a while but we didn’t end up with a happy ending. I wish that I could help Darren find another kidney. This time not just for him and for Sara but also for ALICE! Sweet, adorable, beautiful Alice. It hurts me, it makes me sad every year on November 13. Well, actually it makes me sad <i><span style="font-style: italic;">every day</span></i> because we can’t just think about Darren’s need on November 13<sup>th</sup> or on his birthday or on a day when Sara sends out an email reminding everyone of his need. Sara, Darren and Alice live with dialysis every day and we—their friends and family—need to remember that. We need to remember to love them, support them, pray for them and hey, maybe even get tested for them! </span></p> <p style="color: rgb(0, 102, 0); font-family: arial;font-family:arial;" class="MsoNormal"><span style="font-size:100%;">Here’s what I’d love. How</span><span style="font-size:100%;"> about if everyone helps make November 13, 2010 another day to celebrate. Let’s see what we can do about getting Darren another kidney by then. How cool would it be if Sara and Darren could go to Cabo to CELEBRATE 20 years of health?!</span></p><p style="color: rgb(0, 102, 0); font-family: arial;font-family:arial;" class="MsoNormal"><span style="font-size:100%;"><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhdXUyy5ixwnfg01nC5rhcwHc2FNC1D1Wof7d3SROgPt3a1gy6u4iifdXCDe9Zyj72DmEs5RFEfYgV7FPDbzDTtwQFDglGhjKQRydVq-Mggsm_XCknJqRnY_xrW2mSqQgxmi1G_7BR_IUk/s1600-h/cannon-beach-kids.jpg"><img style="margin: 0pt 10px 10px 0pt; float: left; cursor: pointer; width: 262px; height: 196px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhdXUyy5ixwnfg01nC5rhcwHc2FNC1D1Wof7d3SROgPt3a1gy6u4iifdXCDe9Zyj72DmEs5RFEfYgV7FPDbzDTtwQFDglGhjKQRydVq-Mggsm_XCknJqRnY_xrW2mSqQgxmi1G_7BR_IUk/s320/cannon-beach-kids.jpg" alt="" id="BLOGGER_PHOTO_ID_5403727065401607522" border="0" /></a></span></p> <p style="color: rgb(0, 102, 0); font-family: arial;font-family:arial;" class="MsoNormal"><span style="font-size:100%;"><br /></span></p><p style="color: rgb(0, 102, 0); font-family: arial;font-family:arial;" class="MsoNormal"><span style="font-size:100%;"><br /></span></p><p style="color: rgb(0, 102, 0); font-family: arial;font-family:arial;" class="MsoNormal"><span style="font-size:100%;"><span style="font-style: italic; color: rgb(0, 0, 0);"><br /></span></span></p><p style="color: rgb(0, 102, 0); font-family: arial;font-family:arial;" class="MsoNormal"><span style="font-size:100%;"><span style="font-style: italic; color: rgb(0, 0, 0);"><br /></span></span></p><p style="color: rgb(0, 102, 0);font-family:arial;" class="MsoNormal"><span style="font-size:100%;"><span style="font-style: italic; color: rgb(0, 0, 0); font-family: arial;font-family:arial;" >Cynthia's beautiful kids, Asia and Ezra...and Darren's likeness, Alice.</span><br /></span></p>Sarahttp://www.blogger.com/profile/12085672328168262733noreply@blogger.com0tag:blogger.com,1999:blog-1323855517237523479.post-42312382810146472422009-06-26T15:18:00.000-07:002009-06-26T15:26:55.341-07:00Testing Update: Not a match<span style="font-size:100%;"><span style="font-family:arial;"></span><span style="font-family:arial;">We heard back at the end of the day yesterday (Thursday) that neither Zach or Matt are a match for Darren. Darren's anti-bodies reacted strongly (adversely) to both Zach and Matt's blood samples. I'm thankful for a clear result (although, wish it was a clearly good result!) and know God has a plan, good thing we don't have to worry about that. ;) </span><span style="font-family:arial;"><br /><br />We are disappointed, of course, but not surprised...and certainly not giving up hope. I'm confident that the right person/situation/kidney is out there, and we will be patient until then. We are so immensely thankful for both Zach and Matt for coming forward and committing to donating Darren a kidney, even if it wasn't to be. The hope and Grace we feel in our lives is ever present.</span><span style="font-family:arial;"><br /><br />So, what's next? With your help we can continue to reach out, share and inform...and through that, I hope that the right person is found.</span> </span>Sarahttp://www.blogger.com/profile/12085672328168262733noreply@blogger.com2tag:blogger.com,1999:blog-1323855517237523479.post-50996905389287991302009-06-18T15:47:00.000-07:002009-06-19T12:50:14.727-07:00The Perils of the National Waiting List<span style="font-size:100%;"><span style="font-family:arial;">Every day at about 3:30 I get a Google News email listing all the articles related to "kidneys" that come across the internet that day. Lately there have been a lot of articles about living donors (daughter gives to Mother, friend gives to friend, woman gives to My Space acquaintance...etc.) which is really wonderful. (And apparently there is a trouble making soccer player by the name of Kidney in England that I get to follow as well.)<br /><br /></span></span><span style="font-size:100%;"><span style="font-family:arial;">However, there is also a lot of sobering news. I came across the below article this week in the LA Times, which I thought was worth passing along. The statistics don't surprise me when I see the difference between the amount of people waiting for a kidney on the national waiting list (80,000) and the amount that actually receive transplants each year from that list (less than 10,000). With 400,000 people on dialysis now in the US and the projection being more than 2 million by 2030, the realities are truly sobering. It really drives home the importance of being an <a style="color: rgb(153, 0, 0);" href="http://www.donatelife.net/">organ donor</a>. If more people educated themselves, checked that box on their drivers license and made their wishes known to family...these statistics could change.</span><span style="font-family:arial;"><br /><br />+++++</span><span style="color: rgb(51, 0, 51); font-weight: bold;font-family:arial;" ><br /><span style="color: rgb(204, 102, 0);font-size:100%;" ><a href="http://latimesblogs.latimes.com/booster_shots/2009/06/patients-who-die-awaiting-kidney-reaches-new-high.html">Number of patients who die awaiting kidney reaches new high</a></span></span><span style="font-family:arial;"><br /><span style="color: rgb(102, 102, 102);">2:00 PM, June 18, 2009</span></span><span style="color: rgb(102, 102, 102);font-family:arial;" ><br /><br />The shortage of donor organs has been a problem for many years, and it isn't getting any better. A study published today found that 46% of patients age 60 and older currently on the waiting list for a kidney transplant will die before receiving an organ from a deceased donor. The study is published in the Clinical Journal of the American Society of Nephrology.<br /><br />People in search of a kidney may have better luck trying to find a living donor -- someone who will give up one of their two kidneys.<br /><br /></span></span><a style="color: rgb(102, 102, 102);" onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEho8gvtEtmAC4JKu8lvDCC5OeUdeIgkxmaIZlcIPJnhGdg06vk4IKptbjqr4UfJlKrHaPPbKdBr5aOlUh0OA00md-J_xqctU1wDyBVQp5TPh1PrAmbvDXmJsWVa4Z-IHnJ1Q9C95A3kID8/s1600-h/6a00d8341c630a53ef0115712911f2970b-200wi.jpg"><img style="margin: 0pt 10px 10px 0pt; float: left; cursor: pointer; width: 154px; height: 231px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEho8gvtEtmAC4JKu8lvDCC5OeUdeIgkxmaIZlcIPJnhGdg06vk4IKptbjqr4UfJlKrHaPPbKdBr5aOlUh0OA00md-J_xqctU1wDyBVQp5TPh1PrAmbvDXmJsWVa4Z-IHnJ1Q9C95A3kID8/s320/6a00d8341c630a53ef0115712911f2970b-200wi.jpg" alt="" id="BLOGGER_PHOTO_ID_5349072626932975010" border="0" /></a><span style="color: rgb(102, 102, 102);font-size:100%;" ><span style="color: rgb(51, 51, 51);font-family:arial;" >"We have </span></span><span style="color: rgb(102, 102, 102);font-size:100%;" ><span style="color: rgb(51, 51, 51);font-family:arial;" >now </span></span><span style="font-size:100%;"><span style="color: rgb(51, 51, 51);font-family:arial;" ><span style="color: rgb(102, 102, 102);">reached a notable benchmark in which nearly half of newly listed older candidates will not survive the interval to receive a deceased donor transplant," the lead author of the study, Jesse D. Schold, said in a news release. "Our results emphasize the particular need to consider living donation as an alternative source for some older patients -- or alternatively, the critical importance of navigating the steps to receive a deceased donor transplant as rapidly as possible."</span><br /><br /><span style="color: rgb(102, 102, 102);">Schold, an associate instructor of medicine at the University of Florida, analyzed data on nearly 55,000 patients over age 60 who were on the U.S. waiting list for a kidney transplant from 1995 to 2007. Patients age 70 and older and African Americans were even more likely to die before receiving a kidney. Besides age, factors such as blood type and being on dialysis at the time of listing also affected the odds of receiving a transplant. The study also found wide variations in regions of the country.</span><br /><br /><span style="color: rgb(102, 102, 102);">The number of people who need kidneys is increasing while the number of donors has remained stable. That means time on the waiting list has grown and more people die. Only certain patients are viable organ donors at the time of death. While many family members consent to donation, an astonishing number of Americans refuse to offer what has been called "the gift of life."</span><br /><br /><span style="color: rgb(102, 102, 102);">Information on organ transplantation, donation and procurement can be found on the websites of the</span> <a style="color: rgb(102, 0, 204);" href="http://www.unos.org/">United Network for Organ Sharing</a> <span style="color: rgb(102, 102, 102);">and</span> <a style="color: rgb(102, 0, 204);" href="http://www.donatelifetoday.com/">Donate Life America</a>.<br /><br /><span style="color: rgb(102, 102, 102);">-- Shari Roan</span><br /><span style="color: rgb(102, 102, 102);font-size:85%;" ><span style="font-style: italic;">Photo: A patient receives kidney dialysis. Credit: Mark Boster / Los Angeles Times</span></span></span> </span>Sarahttp://www.blogger.com/profile/12085672328168262733noreply@blogger.com0tag:blogger.com,1999:blog-1323855517237523479.post-63876162145385612112009-06-16T09:21:00.000-07:002009-06-17T11:23:36.775-07:00Testing Update: Step 1 - tomorrow!<span style="font-size:100%;"><span style="font-family:arial;">Darren, Matt and Zach will be going in <span style="font-weight: bold;">tomorrow</span><span style="font-weight: bold;"></span> (Thursday, June 18th) to do the blood draw for the first step of the matching process. As I mentioned before, this test will determine if Darren's body will react to either Matt or Zach's. A "negative" reaction is good (meaning, there was no fighting antibodies) and a "positive" reaction is, as you have guessed, not so good. So, let's pray for a "negative" reaction!<br /><br />We won't know the results of that test for 10 - 14 days. So as we patiently await the results, please pray for clarity in this process. <br /><br />Now off to hold my breath for two weeks...<br /><br /></span> </span>Sarahttp://www.blogger.com/profile/12085672328168262733noreply@blogger.com0tag:blogger.com,1999:blog-1323855517237523479.post-13652680756949719652009-06-10T12:51:00.000-07:002009-06-10T16:18:37.805-07:00Testing Update: Here we go!<span style="font-size:100%;"><span style="font-family: arial;">Well, here we go....</span><span style="font-family: arial;"><br /><br />I've been waiting to post an update until I had as much concrete information as possible. But I can't wait any longer. In the next couple weeks, Zach Entwistle and Matt Peloza are going to have the HLA and genetic typing test done to see if they could be a donor match for Darren! This is the very first (and big!) step in the testing process. Basically, this test will determine if Darren's body will react against Zach's and/or Matt's tissue. If it does, it means that they are not a match for Darren.</span><span style="font-family: arial;"><br /><br />As most of you know, Darren has had a very high sensitivity due to the previous rejection, meaning he has many active antibodies ready to throw down and fight. This has been the reason none of the half dozen or so people who were tested for Darren several years ago were a match. Over the years he's been back on dialysis, his sensitivity has subsided...although still considered high, it's not nearly as high as it was when others were tested for him. All this to say, a match right now is about a 50/50 chance....I'll take those odds!</span><span style="font-family: arial;"><br /><br />Although we are cautiously optimistic, we are unexplainable thankful for Zach and Matt (and their lovely wives, Suzi and Cami :). They're not only willing and ready to give a part of themselves, but with such compassion and confidence. The gift of hope they have given us is a true blessing. </span></span><span style="font-size:100%;"><span style="font-family: arial;">Through all of this, what I hope and pray for the most is clarity and secondly, for patience. </span></span><br /><span style="font-size:100%;"><span style="font-family: arial;"><br />Right now the test is scheduled for the next couple weeks. Once it takes place, we won't know the results for 10 - 14 days. I'll be sure to update the blog with the timing and results as things progress.<br /><br />So...stay tuned!<br /><br /><br /></span></span>Sarahttp://www.blogger.com/profile/12085672328168262733noreply@blogger.com0